Welcome to our Resources Page
The NHS is offering new antibody and antiviral treatments to people with coronavirus (COVID-19) who are at highest risk of becoming seriously ill, this includes people who have Down’s syndrome.
Latest advice: new Covid-19 treatments for people who have Down’s syndrome (aged 12+) and test positive – from the Down’s Syndrome Association:
Following a meeting with NHS England this morning, we are writing to let you know the very latest on how new treatments for people who have Down’s syndrome (aged 12+) and test positive for Covid-19, will be implemented.
Last week, the NHS began offering new antibody and antiviral treatments to people who have tested positive for Covid-19 and who are considered at highest risk of becoming seriously ill.
This includes people aged 12+ who have Down’s syndrome.
You can read more about the announcement here.
What happens now?
- Everyone aged 12+ who has Down’s syndrome and is known to services, will be receiving a letter. The NHS will start posting them today, but it may take them a week or so to arrive. This letter will tell the recipient that they are eligible for new antiviral treatments if they test positive for Covid-19 via a PCR test. There will also be an Easy Read version of the letter sent.
- The letter will also include a home PCR test, which is more accurate than a lateral flow test. If someone tests positive with a lateral flow, or if they have Covid-19 symptoms, they should complete the PCR test and send it back as instructed immediately. If this PCR test is then confirmed as positive, the NHS will contact the person giving them details of how they can access the new antiviral treatment.
- It is vital that the person receives treatment within the first five days of a positive PCR test or getting symptoms.
- Clinical trials have suggested these new drugs are very effective in preventing severe illness.
- The preferred treatment option is an intravenous (drip) drug that would be given in a number of settings, like a hospital. There is an additional option of an oral drug (tablets), which can be taken at home. This is effective, but not as effective as a drip. The clinician should make a decision in discussion with the individual and their family as to which is the most appropriate treatment, especially if getting someone to a hospital would be difficult. Families can accompany their loved one to support them if they choose the hospital option.
- We know that NHS lists may be incomplete, so if someone tests positive or develops symptoms, the family should contact NHS 111 or their GP immediately and outline that their relative has Down’s syndrome. They should ask to be put in contact with a clinician who will discuss how they access the new drugs through a local Medicine Delivery Unit (MDU).
- Treatments are available to anyone who has Down’s syndrome and is aged 12+ and tests positive for Covid-19 via a PCR test.
- The above information relates to people in England only at the moment. We have been in contact with the Welsh Government today (20 December), who confirm access to these medications will be made available in Wales. They say they are now putting together their plan for how relevant people will be identified and given access. We will share any more information from them as soon as we have it.
The Government have made some new rules about keeping everyone safe – this is called Plan B
From 10 December, face coverings will be required by law in most indoor settings.
You may be asked to show a Covid Pass to prove you have had vaccinations.
You can ask for a letter by visiting the NHS website www.nhs.uk/coronavirus
Or you can download the NHS app on your phone and keep a copy on your phone.
Or you can call 119 for free.
Please talk to your support or staff at Winchester Go LD if you would need help with this.
Please download the easy read Easy Read Covid Pass for more details
This leaflet is to give you information about the coronavirus (COVID-19) booster vaccination.
It is really important to keep ourselves and others safe from coronavirus.
Coronavirus is sometimes called COVID-19.
One way we can keep ourselves safer and healthier this winter is by having our coronavirus and flu vaccines to help stop us getting very poorly.
Most people can have the coronavirus booster vaccine safely.
The booster vaccine doesn’t stop everyone from getting coronavirus, but if you do get it, it should stop you becoming very poorly.
If you were very poorly after having your other coronavirus vaccines, you should talk to your doctor.
Here are some easy read guides:
Information about coronavirus from Mencap
Coronavirus (COVID-19) is a new type of illness. There are now a number of people in the UK who have got it and it is spread easily.
Because of this we have created information about coronavirus for you to use, including:
Beyond Words has some great picture books and free resources about COVID.
Some people can’t wear a face mask because of a disability or severe distress. Disability Travel Support have made some cards that can help explain this. You can download them at keepsafe.org.uk or contact Winchester Go LD for help.
A very helpful guide from Mencap with regards Care Act Easement – in easy read. This includes changes to the Assessment process during the pandemic.
Resources for Carers
This Southern Health information pack is aimed at family carers and care providers supporting adults with
learning disabilities through the steps of having the new Coronavirus vaccination.
There are keys aspects which need careful consideration and planning in advance to enable a smooth, successful administration of the vaccine for everyone with a learning disability.
People with learning disabilities depending on their age, specific syndrome and health needs have been placed into different priority groups of the vaccination roll out programme
(groups 1-6). The majority of people with learning disabilities are in group 6. It is important steps to prepare the person/service user are implemented as early as possible before they receive the vaccine and this guide will aid this.
Connect to Support Hampshire is a website for adults in Hampshire. Its aim is to help you stay independent and to manage your own care. You can find local groups, activities and services within your community as well as care providers and other paid services that may help you.
Connect to Support has lots of useful resources. Including information for unpaid carers that we think would be useful for parents/families and supporting friends.
There is lots of useful information here in this information guide from Southampton, Hampshire, Isle of Wight and Portsmouth (SHIP). Aimed at anyone providing direct support to people with learning disability and/or autism
STOP. LOOK. CARE
This booklet is designed to support carers and care workers (hereafter referred to as carers) who live and
work in the Southampton, Hampshire, Isle of Wight and Portsmouth (SHIP) area. Carers should recognise
changes in a person’s condition by monitoring them and/or recognising any deterioration in their wellbeing.
The aims of the SHIP STOP LOOK CARE booklet are to:
• provide a guide for people with a learning disability and/or autism who are supported in the SHIP area
• improve quality of care, maintaining and improving health and wellbeing
• be a Care Certificate companion.
This booklet promotes basic awareness and knowledge of certain needs and conditions and advises where to
refer to, if needed. It highlights:
• why different aspects of observation and care are important
• what to look for
• what action to take
If you have a disability that may not be immediately obvious but would appreciate support from staff in UK airports, certain railways, shops, hospitals and other public venues, then you may be interested to know there is a lanyard you can wear to signal this.
The lanyard, which is entirely voluntary for people with hidden disabilities and their families, acts as a discreet sign for staff that additional support or help may be required.
The hidden disabilities lanyard is also called the “sunflower lanyard” because of its appearance – a strip of green with a pattern of yellow sunflowers. Once you get one, it is yours to keep and use for future travels, visits and outings where the scheme is recognised.
In 2016, Gatwick launched the first-of-its-kind lanyard for passengers with hidden disabilities who may require additional support when travelling through the airport.
For instance, by wearing the lanyard at Gatwick or other major UK airports, you could receive support with:
getting more time to prepare at check-in and security
getting a more comprehensive briefing on what to expect as you travel through the airport
staff assisting with reading a departure board or sign.
Railways and ferries.
The lanyard scheme is gradually being adopted by railways. It is now being used by LNER, which operates the London North Eastern routes, and c2c, which serves 26 stations in East London and South Essex.
Tescos and Sainsburys Winchester are both signed up to the Sunflower lanyard scheme. They have given Winchester Go LD a supply for our members. Please get in touch if you would like one at firstname.lastname@example.org.
The Trustees and staff at Winchester Go LD are fully committed and signed up in support of the Five Principles Nothing About Us Without Us.
National Voices, the leading coalition of health and care charities in England, have heard from hundreds of charities and people living with underlying conditions, and developed these five principles to underpin and test any policy change. They put people and their rights at the centre of decision-making.
1. Actively engage with those most impacted by the change
People have a right to be consulted about changes that profoundly affect their lives. People most affected by service cuts, lockdown, self-isolation, and difficulties with accessing food and medicine, need to be heard and their experiences and concerns acted on. Policymakers must base their decisions on a deep understanding of how people and patients are affected.
Proper coproduction must be the cornerstone of policy design and development as we are making decisions for the longer term.
2. Make everyone matter, leave no-one behind
Everyone matters – all lives, all people, in all circumstances. Whether your life is normally unaffected by health issues or you struggle every day with your ill health or disability – your
life matters equally and needs to be weighed up the same in any Government policy. It is essential that decision makers signal that they want people living with ill health or disability
to lead full lives and remain an active part of society. Even if some people need to live with more severe restrictions, we must take steps to ensure they are able to work, earn money,
access clinical care and socialise. We must move through this crisis together, and leave no one behind.
3. Confront inequality head-on
We’re all in the same storm, but we’re not all in the same boat. Mortality and morbidity are higher for those living in poverty and working on the frontline. People from Black, Asian or
minority ethnic backgrounds are disproportionately affected. Life in lockdown is harder for those living in overcrowded or insecure housing than it is for those in spacious homes with
outside space. There has never been a more urgent moment to confront the social determinants of ill-health as we build back better. All policies to manage the next phase must recognise these stark inequalities, taking a proportionate universalist approach.
4. Recognise people, not categories, by strengthening personalised care
We need a personalised approach to how people want to live. Vulnerability should not mean blanket bans. Having a learning disability does not in itself mean people will have a
short life expectancy or poor quality of life, people in care homes are not simply waiting to die. Not everyone over 70 privileges safety over family contact. The category of ‘vulnerable’ needs to be rethought and broadened beyond narrow clinical criteria to include more holistic circumstances that can make people vulnerable, such as domestic violence, poverty, disability or overcrowding. Personalised care is essential to safety and dignity.
5. Value health, care and support equally
People living with ill health or disability need more than medicine. They need care and support, connection and friendship. Social care, charities and communities are part of this vital, life enhancing fabric of life. The siloing, underfunding and neglect of social care, its workforce, users and purpose as a life enhancing public service has to end. Charities and communities need to be enabled to take part in the design and delivery of future care models. Any policy efforts to rebuild services need to actively address and dismantle barriers between sectors that only ever mattered to funders and regulators. The future will be different. Let’s make sure it will also be more compassionate and equal,
with people’s rights at its centre. The many people who died, who lost loved ones or whose lives have been made immeasurably more difficult deserve nothing less.
National Voices is the leading coalition of health and social care charities in England. We work together to strengthen the voice of patients, service users, carers, their families and
the voluntary organisations that work for them. We have more than 160 members covering a diverse range of health conditions and communities, connecting us with the experiences of millions of people.
For further information:
Rebecca Steinfeld, Head of Policy
Health and Wellbeing Information
Hampshire Hospitals have some useful information on their website here, including:
- The Hospital Passport
- Your visit to hospital
- What to bring
- What not to bring
Beth Lyon is the Hospital Liaison Nurse.
Hospital Liaison Nurse
(for confidential queries and information)
Poster produced by Esia Dean, Health Facilitation Team, 2gether NHS Foundation Trust April 14
The Southern Health Learning Disabilities website has lots of guides, PDFs and videos.
- All About Me
- Annual Health Check
- Cancer Screening
- COVID19 Vaccine
- And more!
As part of our friendship and relationship sessions we have talked about gender and LGBTQ+.
Here is the easy-read document: LGBTQ wellbeing project
We've had lots of really interesting discussions about famous people who were gay, lesbian, single sex marriage and non-binary. The group discussions were brilliant!
Resources for Volunteers
Volunteers are an incredible asset to any organisation and at Winchester Go LD people are often our most precious resource. Both paid staff and volunteers are equally important.
We rely on the hard work and good will of our volunteers. These include our Trustees, Fundraising committee, our group activity and social events volunteers, and exercise classes support staff.
We are looking for volunteers aged 18+ with a love of people, who would like to meet up with members for Walk & Talks or support our group activities, whether that be face to face or on-line. You’ll receive guidance and training and will be allocated a member of staff for on-going support. As a volunteer you are part of the Winchester Go LD family, and you will meet other like-minded people to engage and talk with.
As a volunteer you will be recompensed for any out-of-pocket expenses, and we may ask you to complete a DBS check for any of the Adult regulated volunteering roles (this will be explained depending on the role).
What difference will you make?
Our members are adults with learning disabilities. They are sociable and they like to have fun!
Our Walk & Talks help relieve social isolation and promote physical activity. Being outside and having social interaction supports good mental health.
Our online activities provide a fun way to engage with our members through discussion groups, quizzes, and other games as well as sharing IT skills on Zoom.
Current volunteer opportunities
Online groups are a great option for anyone on a busy schedule, less able to get to our location in Winchester or those continuing to keep their distance from groups of people.
Walk & Talks and Summer Day Trips/ Group activities
The summer 2021 season is about to start! If you are interested in volunteering with any of the above please get in touch.
Or if you have any skills that you would like to volunteer that would benefit the Winchester Go LD community, we would be happy to discuss further.
Please do complete our Volunteer profile form if you are interested in volunteering with us.
We’d be happy to answer any questions!
Please email email@example.com for a chat or more information.
We welcome all new volunteers.
Please find our Volunteer application (profile form) and consent forms below.
If you would like to talk to someone regarding volunteering please email firstname.lastname@example.org with your name and telephone number and we will get in touch.
Resources for Winchester Go LD members
Download our membership forms here. Please return the completed form to email@example.com
If you would like help finding work Go Work application form