Beyond Words has some great picture books and free resources about COVID.
There is lots of useful information here in this information guide from Southampton, Hampshire, Isle of Wight and Portsmouth (SHIP). Aimed at anyone providing direct support to people with learning disability and/or autism
STOP. LOOK. CARE
This booklet is designed to support carers and care workers (hereafter referred to as carers) who live and
work in the Southampton, Hampshire, Isle of Wight and Portsmouth (SHIP) area. Carers should recognise
changes in a person’s condition by monitoring them and/or recognising any deterioration in their wellbeing.
The aims of the SHIP STOP LOOK CARE booklet are to:
• provide a guide for people with a learning disability and/or autism who are supported in the SHIP area
• improve quality of care, maintaining and improving health and wellbeing
• be a Care Certificate companion.
This booklet promotes basic awareness and knowledge of certain needs and conditions and advises where to
refer to, if needed. It highlights:
• why different aspects of observation and care are important
• what to look for
• what action to take
As at 22 December Hampshire is still in Tier 2: High Alert. Here is a useful summary from Inclusion North of the latest Covid changes. Also some great tips on how to keep well.
Thank you to Inclusion North for sharing this useful easy read guide on the latest changes.
Connect to Support has lots of useful resources. Including information for unpaid carers that we think would be useful for parents/families and supporting friends.
15 – 21 June 2020
The theme for this year’s Learning Disability Awareness week is the importance of friendships during lockdown.
The information is for everyone!
We have produced some of this information but some information comes from others.
On our website you will also find out health information on Coronavirus, including Hospital Passports, Annual check ups, flu jabs and other information.
More information about Learning Disability Week can be found on the Mencap Website.
Some people can’t wear a face mask because of a disability or severe distress. Disability Travel Support have made some cards that can help explain this. You can download them at keepsafe.org.uk or contact Winchester Go LD for help.
Information about coronavirus from Mencap
Coronavirus (COVID-19) is a new type of illness. There are now a number of people in the UK who have got it and it is spread easily.
Because of this we have created information about coronavirus for you to use, including:
Poster produced by Esia Dean, Health Facilitation Team, 2gether NHS Foundation Trust April 14
If you have a disability that may not be immediately obvious but would appreciate support from staff in UK airports, certain railways, shops, hospitals and other public venues, then you may be interested to know there is a lanyard you can wear to signal this.
The lanyard, which is entirely voluntary for people with hidden disabilities and their families, acts as a discreet sign for staff that additional support or help may be required.
The hidden disabilities lanyard is also called the “sunflower lanyard” because of its appearance – a strip of green with a pattern of yellow sunflowers. Once you get one, it is yours to keep and use for future travels, visits and outings where the scheme is recognised.
In 2016, Gatwick launched the first-of-its-kind lanyard for passengers with hidden disabilities who may require additional support when travelling through the airport.
For instance, by wearing the lanyard at Gatwick or other major UK airports, you could receive support with:
getting more time to prepare at check-in and security
getting a more comprehensive briefing on what to expect as you travel through the airport
staff assisting with reading a departure board or sign.
Railways and ferries.
The lanyard scheme is gradually being adopted by railways. It is now being used by LNER, which operates the London North Eastern routes, and c2c, which serves 26 stations in East London and South Essex.
Tescos and Sainsburys Winchester are both signed up to the Sunflower lanyard scheme. They have given Winchester Go LD a supply for our members. Please get in touch if you would like one at email@example.com.
A very helpful guide from Mencap with regards Care Act Easement – in easy read.
The Trustees and staff at Winchester Go LD are fully committed and signed up in support of the Five Principles Nothing About Us Without Us.
National Voices, the leading coalition of health and care charities in England, have heard from hundreds of charities and people living with underlying conditions, and developed these five principles to underpin and test any policy change. They put people and their rights at the centre of decision-making.
1. Actively engage with those most impacted by the change
People have a right to be consulted about changes that profoundly affect their lives. People most affected by service cuts, lockdown, self-isolation, and difficulties with accessing food and medicine, need to be heard and their experiences and concerns acted on. Policymakers must base their decisions on a deep understanding of how people and patients are affected.
Proper coproduction must be the cornerstone of policy design and development as we are making decisions for the longer term.
2. Make everyone matter, leave no-one behind
Everyone matters – all lives, all people, in all circumstances. Whether your life is normally unaffected by health issues or you struggle every day with your ill health or disability – your
life matters equally and needs to be weighed up the same in any Government policy. It is essential that decision makers signal that they want people living with ill health or disability
to lead full lives and remain an active part of society. Even if some people need to live with more severe restrictions, we must take steps to ensure they are able to work, earn money,
access clinical care and socialise. We must move through this crisis together, and leave no one behind.
3. Confront inequality head-on
We’re all in the same storm, but we’re not all in the same boat. Mortality and morbidity are higher for those living in poverty and working on the frontline. People from Black, Asian or
minority ethnic backgrounds are disproportionately affected. Life in lockdown is harder for those living in overcrowded or insecure housing than it is for those in spacious homes with
outside space. There has never been a more urgent moment to confront the social determinants of ill-health as we build back better. All policies to manage the next phase must recognise these stark inequalities, taking a proportionate universalist approach.
4. Recognise people, not categories, by strengthening personalised care
We need a personalised approach to how people want to live. Vulnerability should not mean blanket bans. Having a learning disability does not in itself mean people will have a
short life expectancy or poor quality of life, people in care homes are not simply waiting to die. Not everyone over 70 privileges safety over family contact. The category of ‘vulnerable’ needs to be rethought and broadened beyond narrow clinical criteria to include more holistic circumstances that can make people vulnerable, such as domestic violence, poverty, disability or overcrowding. Personalised care is essential to safety and dignity.
5. Value health, care and support equally
People living with ill health or disability need more than medicine. They need care and support, connection and friendship. Social care, charities and communities are part of this vital, life enhancing fabric of life. The siloing, underfunding and neglect of social care, its workforce, users and purpose as a life enhancing public service has to end. Charities and communities need to be enabled to take part in the design and delivery of future care models. Any policy efforts to rebuild services need to actively address and dismantle barriers between sectors that only ever mattered to funders and regulators. The future will be different. Let’s make sure it will also be more compassionate and equal,
with people’s rights at its centre. The many people who died, who lost loved ones or whose lives have been made immeasurably more difficult deserve nothing less.
National Voices is the leading coalition of health and social care charities in England. We work together to strengthen the voice of patients, service users, carers, their families and
the voluntary organisations that work for them. We have more than 160 members covering a diverse range of health conditions and communities, connecting us with the experiences of millions of people.
For further information:
Rebecca Steinfeld, Head of Policy
From 2 December the new Tiers system has started.
Hampshire is in Tier 2 – HIGH ALERT.
It is a good idea to discuss with support and family members what this means for you and how you can stay safe.
1. People with learning disabilities are more likely to catch COVID
2. If they catch the virus then people with learning disabilities are more likely to be VERY poorly and need to go to hospital.
3. More people with learning disabilities die of COVID 19 than the general population.
This easy read guide by #LDSpeechies is a great summary of what you can and cannot do.
The full easy read guide is here.